Seems like a long time ago. First surgery on the fourth of September and then more sickness. We left for Atlanta in that ambulance with Ty the fourth week in September.
Ty had the bottom half of the VEPTR rod removed due to infection (MSSA) and we were there for a week. It seems like a blur getting home with the PIC line and getting nursing care lined up. We were so overwhelmed with the 24 hour antibiotics.
It was well into the second week of November that the line crimped and they decided to use oral meds.
It was the third week that I broke a thumb nail to the quick. My hand and arm swelled within 24 hours. After antibiotics and another 24 hours the tendon of my arm was infected and infection had reached my chest. I was hospitalized. My orthopedic surgeon was called in and off to surgery I went. It took a week and surgery to get that under control. They removed the infected area from my hand and that took weeks to recover from. They ruled out staph and have no idea what caused it.
The day I got out, my husband was in the other hospital across town.
The day after my husband got home we took Ty to Atlanta to have his staples removed. His orthopedic doc took one look at my thumb and said it was a bacteria common to roses. Sure enough, I had NOT bandaged my broken nail and took the garbage out that day. Walking back I paused for a second to pull some weeds out of the roses.
After everyone got home, we gradually got it together and got some help at home.
I had pulled Ty out of the nursing day care the first of September and we finished the arrangements for in home health care for him. Thank goodness for that. My friends pitched in and helped us with the rest. Do you know that you need your thumb? Mine hurt like crazy because they had removed all the skin!!
Now I still can't bend it but I can type! YAY!
Ty has been on mega powerful antibiotics since the rod was removed. On the first of this month he began running a low grade fever. I have called the doctors again and again about it. Yesterday they called because the bi monthly blood tests show his white blood cells have bottomed out. They are talking bone marrow biopsy. I think it is the meds. I have asked for a change in the meds.
For now we are stuck at home and have to keep lil man away from crowds. We are keeping a low profile.
On the positive side Ty has been granted a wish from the folks at the "Make a wish" foundation. Since we cant go anywhere we have decided to let them have our enclosed double garage and do what ever they want as long as it includes an indoor swing for him since he is so bored and cant get out side like this....
I wanted everyone to know where we have been. We are still here but sore and tired. Hopefully with prayer and endurance things will be better....
