31 for 21! Lookin' good!

Mr Ty, checking his hair, getting ready for the picture!!  LOL! 

 

 

The little extra that demands style!  

Day 12

Day 12

31 for 21!!

 

Ok I could rush in and fill in the missing days that I posted on face book...but instead why don't I point out that I am not perfect or a saint?  Just because I have a kid I adore and fight for every day doesnt mean that I am 'holier than thou'.  I am not chosen, stronger or outstanding in any way.  Any one of you (pointing a folks who do not have a "special needs" kiddo) would fight for your child.  And you get too busy and make mistakes too...

 

really then, we are so much alike!  My family and yours...

 

So I will leave you with my dinophant encounter today.  Imagination at its best!

The dinophant came out of nowhere...(ok, the bedroom) and attacked! 

 

He chased the therapist and mom...even threatening the biggest of the...

 

dinosaurs in the corner!! 

 

"Enough OT and ST!  Enough!" he roared!  "Now I will show you!  I will roar and make you go 'Ahhhh! help me, help me!  A dinophant is getting me!' you'll see!"

 

I have never seen a cuter dinophant in my life!  LOL! 

 

Even if I do make mistakes, run late and forget to post, I am loved by a dinophant. 

That makes it all ok in my world!

And the winner is...31 for 21, day 5

Therapy had its trials today...messy.  He was not happy until...

 

 

He met Tim the tennis ball, who eats!  LOL

 

And what man can resist tool sets?

 

And the winner is...TY CHRISTIAN! Yes sir, for completing all of your OT, you win a well used Deigo camera! Right from the yard sale! LOL

 

 

I love his adventures!

31 for 21! Day 4, need I say more?

The most beautiful eyes in the world.

 

All people...31 for 21, Day 3

All people have different levels of cognitive development. 
All people have weaknesses. 

 

That being said I submit the following:

 

All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.

 

For instance my son was able to read his Pre K and K sight words very early.  I was encouraged when a teacher came to work with him and was astonished.  She said that she knew kids of the same age could not do that.  She noted those kids needed to get to work on it! 

 

My point being...everyone has strengths.  My son's strength is in reading.  He does not hold a conversation with anyone, but he can read his books.  He is putting sentences together.  He is spelling.  All of us have different levels of cognitive development.  His emotional development is about half his age.  I am not worried.    I love my boy!  I do not compare him with anyone...he is who he is!

 

 

Reading is his strength! 

 

 

And he is proud of it when he does a good job! 

I love school time with him! 

All people have strengths! 

 

31 For 21! Day Two!

I thought about offering dry facts, even letting cute comments or quips explain.  

My conclusion was to let him show the facts about Down syndrome! 

Lovin those blues! 

 

 

Whether or not you have Down syndrome has nothing to do with creativity and happiness!

 

When he hears music, his love of art comes out!  He plays the drums, sings and even grabs the flute and goes for it.  Yes, he is creative. Yes, he is happy. 

We were listening to some blues music today.  Ty grabbed his sunglasses and started playing along!

His joy is plain to see!

I want to grow up!

I know these surgeries are necessary for him to grow. 

Little guy has had more than his share of physical pain but when he smiles,

when he reaches out to grow, I know God is good! 

If only it were just Down syndrome...life would be a peice of cake!

 

 

Doing all the things other boys do!  Looking up to dad!

Being daddy, pretending, playing.  Such joy in small things! 

 

RECIPE FOR A WHOLESOME CHILD:

Blend carefully these ingredients: tenderness, discipline and patience. Add: two large portions of love with daily guidance from above. Add: regular Bible lessons with cozy family sessions. Add: some work, some play, some hugs each day. Season lightly with laughter and tears. Simmer slowly for twenty years. Baste daily with encouragement, forgiveness, and compassion, And you will have a child you'll be proud you helped fashion. (unknown)
 

31 for 21~  October is Down syndrome awareness!  

 

So folks, for 31 days we are going to talk about Down syndrome!  How about some facts first? 

Individuals with Down syndrome have 47 chromosomes instead of the usual 46. It is the most frequently occurring chromosomal disorder. Down syndrome is not related to race, nationality, religion or socioeconomic status!

http://www.ndss.org/Down-Syndrome/What-Is-Down-Syndrome/

In every cell in the human body there is a nucleus, where genetic material is stored in genes. Genes carry the codes responsible for all of our inherited traits and are grouped along rod-like structures called chromosomes. Typically, the nucleus of each cell contains 23 pairs of chromosomes, half of which are inherited from each parent. Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21.
This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome. A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm - although each person with Down syndrome is a unique individual and may possess these characteristics to different degrees, or not at all.

Everyone is different.  Everyone is the same.  (my two cents)

One in every 691 babies in the the United States is born with Down syndrome, making Down syndrome the most common genetic condition. Approximately 400,000 Americans have Down syndrome and about 6,000 babies with Down syndrome are born in the United States each year.

Just a little info to start the month off... Thanks!