Thursday, February 28, 2013

The smiles make it all worth it!

Right now, Ty Christian is doing well. 
I can tell the curve has progressed and that he is off balance.  His right lung has reduced capacity and I see the buldge in the small of his back. 
 I see the knot on his left shoulder and the Kyphosis is increased. 
 
I keep thinking how we do not want this surgery again. 
 
I also know what the outcome would be without it. 
 
 
A couple of months ago, I was tricked into bringing a little car home. I tried very hard to pass it on to someone else, after all, Ty would hurt his back in it. It wasnt something I wanted to risk.
He has so much pain.
 
I tried to put it in the yard sale, sell it online and even give it away.
 
Each time I was blocked by the giver.  "If you are going to get rid of it, I want it back". 
Somehow they never came to get it.  I guess thats the trick, right? 
 
Then, one warm day, dad takes the car outside and encourages lil man to give it a try. 
I said "hey, you can't do that!"   Dad grinned and said there wouldnt be anyone around. 
No people, no crowds.  He would be safe, after all, so close to surgery and he can't be in crowds...
I was concerned. 
Ty can't walk very far on concrete without being in great pain.
Ty can't sustain active play that bounces him around with out suffering later.
Ty can't even travel in a car very far without pain meds.  He can't tolerate cold or rainy weather. 
He can't run, jump, go down the slide or ride a bike...
He can't...
 
But he wants to
So dad let him take it for a spin.  The smiles, oh, the smiles! And the giggles! 
And the victory cheers! 
 
 
 The "can'ts" are thrown out the door and the day is his! 

 
Lesson learned...again!  Quality is better than quanity. 
Did he hurt after? 
Sad to say, yes.  But oh the smiles and joy he had riding around that afternoon.  So much fun for him. 
I am thinking Disney World...


Wednesday, February 27, 2013

Our adventures! Baker Ty and the cupcakes!

Ty loves Curious George. 
Anyone who does knows the story of George and baking the cake. 
Dad was home today and decided to let Ty bake some cupcakes...mixer and all. 
Ty enjoyed putting the cupcake liners in...
 
And in the pattern of George, Ty wanted Suzie to get to taste the batter. 
Convincing him and dad that was not a good idea took a while. 
But they gave in and Ty enjoyed stirring and pouring the batter. 
He loved doing this. 
My lil Chef!
 
Very serious about his cupcakes!

 
Ty knows the oven is "hot" and totally respects that. 
He could not wait for the buzzer to go off...he wanted those cupcakes! 
He was excited to watch them in the oven as they cooked...and he thought the mitts were fabulous!

 
And the buzzer goes off!  Victory! 

 
He had so much fun cooking!  Think I will let him make breakfast! 

Just an update...we were lost!

We have been so busy with homeschool, therapies and well, life.  I wanted to update and let others know we are on our way back into surgery very soon.  I just cant get used to that.  To know that it has to keep happening.  One day I hope it will stop.  I want to see that smile every day.  I hope one day it does not require surgery of the magnitude he has to undergo for him to live.  Too much.  Sweet boy.
 
 
 
 

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