We have been so busy with homeschool, therapies and well, life. I wanted to update and let others know we are on our way back into surgery very soon. I just cant get used to that. To know that it has to keep happening. One day I hope it will stop. I want to see that smile every day. I hope one day it does not require surgery of the magnitude he has to undergo for him to live. Too much. Sweet boy.
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