Remaining calm and keeping up with our schedule is the best thing for lil man. Remember that self. Ok.
We went to the doctors office so confident, so sure. We went with the idea of pointing to the protruding screws that are so close to the skin and poke out so much it hurts him to lean back on anything hard. We were going to say "ok we need that fixed" and "why are the screws failing and backing out" and other questions. Questions like "when can he go to school or join in with groups of children to play?" and "when can I trust and let go and be sure he wont get hurt and not walk again?".
Scoliosis and Kyphosis. Lots of pressure in his back. OK...
This surgery will not fix the protrusions on his back. It may infact add two more screws that will stick out. The good doctor says he is ordering two peices of equipment to have on hand so that once he opens he can make the final decisions. Two. Two rods on that tray. Deep breath...hold on. Ok. Its the "lesser of two evils." as the good doctor explains.
That is ever present on my mind. Now here is what else is going on...
Well this Friday and Saturday are the yard sale days. LOL...I picked the two coldest days so far. Maybe it will work. No,thats the wrong view...If it has God's blessings it will work. So I will keep praying.
Recipes for Love
In the state of Georgia many children are in need of ABA therapy. It’s not covered by insurance so many children are either not receiving it or making do with reduced care.
“Recipes for Love” is one mom’s solution to the problem. In an effort to obtain therapy for her child and as many others as she can, this cookbook was born.
Recipes for Love is a collection of precious family recipes from those who want to reach out and help.
A longtime friend once said "nothing beats a failure but a try" so....
Can you share a recipe? That secret one? Share one in memory of someone? The name of the cookbook is "Recipes of Love".
Please send to clohen2410@yahoo.com
The yard sale buys the supplies to print the books. The book is based on the recipes provided by friends and my family. The proceeds will go to Christians therapy and any left over OR if the revenue keeps coming in I want to set up some kind of something to help provide ABA therapy to other kids...even if it is just paying for one or two sessions to help out.
Ok...back to the pile for the yard sale.
Oh but let me leave you with a visual of why I am doing this!









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